Health in the news: Discussion

Recently David Rothman published a post in which he talked about "sites that critique journalism." These sites exist in order "to fill the information gap which can arise from:

• confusion caused by media reports on the publication of new scientific studies relating to the same medical area, but with contradictory conclusions;
• inaccuracies in some media reporting caused by - difficulties in communicating complex medical information to a non-medical audience; over-zealous sub-editing to make news items/articles 'fit to size' and the issuing of press releases, by medical journals, which may not always report limitations in newly published studies - leading to further miscommunication of information;
• a reluctance from some doctors to speak to the media, due to perceptions within the medical profession that doctors may be misrepresented or misunderstood;
• public perceptions that 'official' medical or scientific advice may be influenced by policy matters; and
• difficulties in knowing where to obtain independent quality-assured medical information. (Behind the medical headlines: about, retrieved 29 Jan. 2009)
  

I've being thinking about this a lot lately and have been meaning to write about it. My particular peeve has to do with the fact that news articles rarely, if ever, cite their sources. Articles in the news will at most mention in passing that such and such study was published in the October issue of the New England Journal of Medicine. The researcher's names are usually mentioned.

That is enough information for me to find the article, but is it enough for the lay person? Since a big part of my job is teaching health professionals how to find articles they sometimes have difficulty finding when they have the complete citation and access to McGill's full complement of journals and databases, I suspect that it is not enough for your average person reading the paper.

It took me half an hour of skilled digging to find the research discussed in this article a friend recently posted to Facebook: Surrounded by friends? It's all in your genes. Eventually "...I was able to find out that it was published in the Proceedings of the National Academy of Sciences in the Early edition ("published online before print January 26, 2009") which is available by subscription only- the copy I have linked to here is not the final published draft."*

Interestingly the proper citing of sources does not seem to be considered of much importance by the sites mentioned by David, or the site I usually recommend (Behind the medical headlines). Health News Review.org states that

An Unsatisfactory story may:
• Fail to identify the source of the story (news release, journal article, editorial, scientific meeting presentation, etc.) and fail to make obvious the extent to which that source is likely to be conflicted... (Health News Review: About us, retrieved 29 Jan. 2009)

Media Doctor.ca states that "No mention of sources or possible conflicts of interest" (MediaDoctor: Rating information, retrieved 29 Jan. 2009) is unacceptable in all relevant categories (Diagnostic Test, Harm Stories, Other, Pharmaceutical, Surgical Procedure). However, mentioning or identifying information sources is not the same as providing enough information about the sources that they can be easily accessed.

How difficult is it to include the journal issue and volume? Since more and more medical research is becoming freely available thanks to open access initiatives, why not go so far as to include a link to the full text? And if it is as yet unpublished shouldn't that be mentioned too?

I am continually emphasizing to patients and their families the importance of evaluating consumer health information resources, and one of the most important criteria is precisely: does the resource cite its sources? The HonCode lists this as number four out of eight principles that need to be followed in order to be certified. The National Cancer institute lists it fifth on its list of criteria, and the American Medical Library Association lists it third.

When will news media be held to the same principles?


*Speaking of citing your sources, to be honest I'm not sure how to cite something that I wrote in a Facebook post. If anyone can tell me I'd be glad to know. In any case my comment was posted on at 8:14am January 28.

Nutrition information in Cantonese: case

Scenario

A middle aged man is referred to me. He leaves a phone message telling me he is interested in information on Type II Diabetes and diet in Cantonese for his father who is a patient at the Herzl.

Resolution

I search the following resources*:

The 24 languages project
Health Information Translations
Healthy Roads Media
HICUP
NLM Consumer Health Information in Many Languages Resources
SPIRAL

I am able to find some good information in Chinese on the SPIRAL site:

SPIRAL > Patient information by language > Chinese > select "diabetes"

Unfortunately I am not able to determine whether this information is specifically in Cantonese (health information is generally available in either traditional or simplified Chinese). I call the man back and he asks me to email the links and says he will ask his father whether he is able to read the information. I tell him I will be happy to continue looking if necessary. He then asks if I can find something that might help his father understand the different food groups and portion sizes. I do a web search using Google: canadian food guide chinese. The first hit is a copy of the guide translated into Chinese (pdf).

I email these links to the man including some information about navigating the SPIRAL site.

I place a copy of the consultation form in the attending physician's mailbox.

*All of these resources have been bookmarked in the list of public MyHq bookmarks I have created for myself and the Herzl health staff.

Total time: 20 mins

Discussion

I consider every encounter an opportunity to teach people how to find information and not just hand it over. At the very least I show the path from the resource's home page to the desired information. This also minimizes dead links.